Grief is a complicated thing and people vascillate between deep despair, denial, anger, making "deals" <--I never did that one, back to one of the ones just mentioned and over and over. About anger... they never really tell you why you're angry or what its going to be directed at, do they? I guess it could be anything.  

Day before yesterday, I saw Oil of Olay bodywash Mom had gotten me for Christmas and I just bawled. For 2 hours. The thought that I didn't do enough for her, make her feel loved enough, just kills me. Since I had Devyn, I didn't have the patience I used to and the thought I'd hurt her feelings, kills me. Not being able to call her to tell her this weird mix of haircolor I concocted looks good, kills me. Not being able to hear her blather away about dumb things breaks my heart. 

Last night, we go there and she's not waking up at all. They'd done a CT scan and there is nothing wrong with her head that she can't wake up... she's just sick. Its not pain meds, its not a high fever, she's just checked out. Hell, I've been sick as a dog, had 105 fever and saw things, yet I could still say hi. WTF?

Then I got angry. I'm actually relieved, anger feels better than that despair. 

A long time ago, a couple built a house. They didn't have everything that they really needed to make it as sturdy as they should, but they wanted one anyway and they built it where they wanted to. It turned out to be a really good house. In the early years of its "life", a hurricane came along, Camille. The house still stood, most folks were surprised given that the hurricane had 200 mph winds. Sure, it lost its shingles, shutters and porch, but somehow the little house made it.  

Other things happened throughout time, additions had been built onto the house, new rooms, renovations, celebrations, births and birthdays. More hurricanes came and went and the house creaked and moaned and the superfluous parts blew off, but the main structure still stood. The couple was proud of themselves and their construction and maintained life as usual, thinking that all is fine. They tended to the outside, the gardens, the furniture, but never thought to check the bones of the house.

Later on, a small but compact storm, category 1, hit the house and this time, it started to shake more than usual, making crumbling sounds. No one understood: its withstood the biggest and strongest of winds, why would it now begin to crumble? The winds are coming from a different direction, its a small storm comparatively, so why is this happening? 

No one heard the support beams splinter in initial storm's torrential rains because they were so busy mopping up the superficial water on the floor. So now, people are shocked that this small category 1 is about to take out the small, seemingly sturdy house. 

The ones living there even get mad at the house: this is a completely different situation! Why are you crumbling??

How stupid is that?? Well for someone seeing the situation for what it is, there are a few choices... strengthen the support beams, move the house away from the hurricane-habitat or watch it blow over. 

Such is the life of someone who is an ACOA when they live long enough to revisit situations that remind them of initial childhood insults. Even long after sobriety and the choice to live a better life, the structural damage remains. In my situation, I've saved my Mom's life over and over and over-- whether it was through hiding her booze so she wouldn't drink into oblivion and drown in the bathtub, begging her to leave a man who would eventually kill her, all the warnings I gave her to behave differently when Dad (if he knew what she was doing) would beat her for what she was doing, hiding her in my closet when she came back after "running off", to actually sitting on her lap as a human shield when he was going to shoot her. 

Today, I am tired of having to make life and death choices for someone who isn't present. 

No matter how many times Stephen tells me that the situation is different, I can't help but feel tired and resentful. Yes its different, but the effect is still the same. I don't get a life, I get sadness and fear and loss. Whether its by choice (alcohol, a husband) or by nature (Nocardia), I am fucking tired of this and angry. I want her to suck it up, wake up and make a choice between life and death and not leave me to do it for her, like most of my life.     

But as unfair as it is, thats not going to happen. And I'm still left here to look at limbo with the thought that something else could be done to snap her out of this. My heart still breaks and yearns for the person she was before the illness. I still see some fucking olay bodywash somewhere, all day every day. God, I miss her and I'm mad and I don't want to make this decision. But here I am. 

My beams may be wobbly, but my foundation is strong. So fuck you, storm, bring it. Blow the house down. I'll rebuild.  

This is so not what I want to blog about, but I've got to get some of this out. I'll let friends know a little bit at a time, but thats about it. And, just to let them know why their stuff isn't done yet or I'm late for something. I just had to take a minute.

Life's been hard recently and just when I thought it can't get any harder, it did. Mom had been chronically ill and on her last days/weeks/months, but I had to put being with her on the backburner to work at what I could to make ends meet. I worked my ass off painting, promoting, etc. The day that Mom got really sick, I broke and told Stephen to do what he had to do to get whatever job he could. I literally told him to stalk the HR people where he's sent resumes and meant it. 

Then, good news: we got relief when Stephen got word that he was hired in Seattle. I can't even remember the name of the place... Its going to be a drive, but I am so relieved. I'm just worried for him travelling that much and being tired. It is so hard to be ripped apart by having to choose between making a life for your child/family or spend your last experiences with your Mom. I chose and now I don't have to. Thank you, God.  

Tuesday, Sept. 10, Mom was admitted to the hospital with with colitis- caused by the serious chemo-type antibiotics that is supposed to help win the war against Nocardia pneumonia she contracted in June/July of this year. Long term steroid use (which is sometimes just one course) creates vulnerability to Nocardia. She had to go to the hospital... they took her off the antibiotics for the colitis. The Nocardia had no speedbumps and then took off like a shot and sepsis ensued (the infection is in the blood then).

Then septic shock. Seeing her there, swollen like a blimp and leaking fluid from her extremities and on a ventilator, was too much. There is a point in illness when you had rather bear the huge loss of a loved-one rather than see them hold on through suffering for you. You can let your loved ones go much easier than watching them suffer. I think that is how parents of terminally ill children survive the aftermath. I could survive Devyn's passing better than seeing him suffer- oh God. Just please don't ever put me, him, us through that, please, no part of that. No parent should.

So, these days are filled with getting up with less sleep under my belt than I'd like, trying to take care of Dev as best I can, grabbing a minute for computer work and chores, trying to keep more patience than I feel like I can handle at the moment, going to the hospital and loving Mom, coming home, doing dinner, staying up late and working. Its hard and sad, but its supposed to be. And I'm not doing it alone, Stephen is here and doing the best he can, too. 

I'm so grateful to love what I do and have a passion for it. Graphics, promo for the Stanwood-Camano Arts Guild, painting, loving people through what I do. As a gift from God, it has been my saving Grace. 

They took the ventilator out today, but her other numbers aren't looking good, but we'll see how that changes with this new antibiotic. She woke up talking about Mary, Mary, Mary Magdalene. Her mind isn't here and she's in between places and the Angels, Spirits, Guides are helping her to let go here by forming relationships there. They know she won't let go because of the love she has here. That is what I think is going on. I really think they tried earlier and it didn't work- she's a clinger and she wouldn't let go. This time, they're taking their time and easing her into it- but that means her body feels more pain than we here want to see her feel. 

I can't wait to share the dream that Stephen and I had. It'll be a painting, probably one of my best. Just when I think things can't get more beautiful, rich, mysterious or unbelievable, it does.